I often get asked ‘how do I find a good specialist?’ There are several ways to find one, but it is a lot easier if you already have a diagnosis, so I will start with what to do when you do not have one yet.
If you have been to countless GP’s and specialists and they have not been able to come up with a useful diagnosis yet there are a few things you can start with. You can start by joining a few general chronic illness forums (see the link below) and read other people’s stories and see if you have something in common (that is partly how I got diagnosed after being ill for a long time) and you can ask questions. Or you can Google your synptoms to see if you can find something familiar, but be careful, a lot of illnesses have similar symptoms and you could get overwhelmed! My advice is to be very sceptical. But once you have a slight idea of what your illness could be, you could join online forums or support groups and check it out more in detail. These groups and forums often can help you find a good specialist, they have reviews posted on doctors and links to medical articles as well. You can find them on Facebook but there are also non-Facebook groups and forums.
For those who already have a diagnosis, this is a good web site to check out: But You Don’t Look Sick
Good luck 🙂